Some updates

We had a consult with the pediatric Speech-Language Pathologist yesterday. The pediatric portion of my field is SO cool… I just don’t know enough about it! Give me an adult and I can talk knowledgably about their swallow. Show me my adorable children, and I forget all my training 🙂 She was great and had some really great suggestions for how to help Marissa get through her whole meal! I tried them and they worked, so I feel much better that she is getting enough food and that I can help her if she isn’t. She had great suggestions for Zach too, because our two kids eat in very different patterns. Unfortunately, our little Zach needs one more procedure. After his crappy day a few days ago, I talked with him about how strong they have both been and how he doesn’t need to work so hard to handle so much anymore even though I know he can, because we’re giving him a break for awhile. Then this. He needs a very common procedure to snip the lingual frenum (the little tendon under your tongue if you point your tongue up and out of the way that connects it to the floor of your mouth) so that he can stick his tongue out just a touch farther and have more mobility. After all he has been through, it was just another thing to put him through! When do they get to just be babies, you know? We prayed to know if this is even wise for him right now because if he is sore, it will damage all his good progress on eating! It happened today and went fine and he was a champion. I am so amazed by our kids! They have been through so much during these 9 days, especially if you look at their pictures from the early days. Marissa is so tiny, but she is a little star at eating even though it tires her right out. And Zach has made new progress on something every time I see him, from eating more and more to healing to giving himself the hiccups less while he eats! He just keeps cranking along even though terrible things keep happening to him. And they are benefitting from being together… I’m SO glad they have each other there! Marissa can’t eat when Zach is crying because she pays attention to him instead and starts up again only once he feels better.  And he is completely aware of whether she is nearby. She cries so rarely, but he furrows his little brow everytime she does and snuggles closer to her. Then they try to eat each other and it’s adorable to see them explore! We Olsons eat ice cream on crappy days, and I promised them some retroactive ice cream payment as soon as they can enjoy it for all this crappy stuff they have been put through.

In more fun news, we are thrilled to have the privilege of “acquired” good culture via our great relatives! Matt’s sister, Alana, lives in Scotland with her husband Neil. I have to show you the pictures of these gifts that came in the mail for Zach and Marissa. You have already seen the super-cool baby Jayne hats they sent, but Alana crocheted these beautiful sweaters herself and then the Scottish items speak for themselves in cuteness!

Enjoy!

Tiny Tartans Scottish tshirts Beautiful sweaters!

Look what God has done!

The NICU takes photos of the babies to keep a NICU diary of each of them. I wanted to show you what God has done in their little lives!

Here are the babies on their first day. It’s hard to even find Zach under all that equipment, so you’ll have to look at Marissa’s photo to get your bearings. They are wearing a CPAP machine to help their breathing, have an IV in their tiny hands, a feeding tube up their noses, and are under warmers to help maintain their body heat. They also have stick-on leads on their chests to keep track of their hearts and respiratory cycles. They wheeled in my hospital bed for a short visit and I just reached out and touched their tiny beds in my groggy state. You are looking straight down at Zach with his chin on the left, and the wide blue stripe across his tiny forehead.

Marissa, Day 1 Zach, Day 1

By late Day 2, the CPAP machines were removed. Here are the babies on Day 3, with their IVs and feeding tubes. Marissa no longer needed the warmer and moved to their crib, but Zach had trouble maintaining his temperature, so they put him back under his.
You can see tiny needle marks in his hands where his IV used to be (it’s in his right arm in this picture). They finally had to move it to the top of his head so that he couldn’t pull it out. Apparently, he has my horrible veins… really easy to see until you go in to find one and then they disappear. I was stuck in 3 places and several times per place to get mine inserted!

Marissa, Day 3 Zach, Day 3

On Day 4, they got down to just their feeding tubes and Zach’s IV (seen here on the top of his little head). All 3 of us had our IVs removed on Day 4: Marissa, first, then mommy, then Zach. And Zach moved into the crib with Marissa permanently and started making great progress. He was always so concerned-looking when he heard babies crying at the NICU because he couldn’t see his sister and didn’t know if she was okay. We put them right together in the crib and find them scooted even closer together later. They are so aware of each other and it’s beautiful.

Twins, Day 4

On Day 5, they had their feeding tubes removed! You have seen the pictures of them since then.

On Day 8, yesterday, we had a very painful day for everyone with Zach’s circumcision, blood draws from both of them (as if he hasn’t been through enough, they weren’t able to test his first draw, so they had to take his again last night after I posted). He is so strong, but it is definitely time to just let him recover!  This morning, Day 9, we took pictures of some much needed cuddling time. We usually put them back in their cribs right away to get them the most sleep possible, but yesterday and today we just rocked with them. Marissa saves her most expressive faces for when Matt is holding her– he gets the biggest smiles and the most tongue stick-outs from her 🙂 And Zach just snuggled with me and we talked about what a great job he has done getting through all of this. We are so very proud of both of them!
Mommy and Zach Daddy and Marissa

God has been so good to us!  What sweet, wonderful, awe-inspiring babies He created especially for our family!

What a relief!

I meant to post about this earlier, but it has been a busy day. The whole “augh, the babies are coming home… get ready, get ready, get stuff done” mode definitely set in, and of course, we were at the hospital until 9am this morning with our “rooming in.”

Speaking of… it went very well. It was so great to be with our children, although it was a new environment for them and for us. They were still hooked up to their heartrate/respiration/body temperature monitors, and we found out just how often those machines go off! Preemies have immature cardio and respiratory systems, so they have regular heart skips and breathing apneas, but it’s really scary even if you know to expect it. I was feeling less and less okay with bringing them home because if they each have an episode 2-4 times just in the night, how on earth will we know that at home and help them? I pictured myself willed awake and watching them all night long to make sure they breathe. That’s a normal “new parent” response, but our babies actually do stop breathing and skip heartbeats regularly, so it isn’t just fear that they might… they will. Little Marissa was completely lethargic and refused to even open her eyes for 2 feedings and so she barely ate anything for 2 of the 4! We called the nurse in, and she had trouble feeding her as well. You cannot force food down without the feeding tube they took out, so if she won’t eat, we can’t really do anything. That’s scary too, because eating just exhausts them right now. They have only been eating everything orally for just over 24 hours, and it is aLOT of work to get their suck-swallow pattern coordinated and working. It is even harder to do it while breast-feeding than from a bottle, which is why they are too little to breast-feed yet. They didn’t have to spend so many calories getting the food down when we could put it through their tubes, so they were able to just grow. Now, they work very hard to eat! Our little troopers. I think the fact that Zach is larger helps him get it down easier, but Marissa is so tiny that she just tuckers out. There is a balance between getting enough food in and not working too hard to get enough food in.

Their MD came back from the holiday weekend today and I called him this morning to see what he thought. His assessment was wonderful… he thinks they are unready to come off the monitoring and that it is too early to bring them home. We want our babies home as soon as it is safe for them, but after last night, it was obvious to us that it is NOT yet safe for them, and we’re so glad he agrees! We just can’t monitor the things they need right now, and a few more days would make a world of difference in their development.

They proceeded to have an incredibly crappy day… they started a medicine that will help even out their breathing patterns and reduce their apnea, Zach got circumcised and was miserable, and the nurses needed to stick needles into their tiny feet and squirt out a tube of blood from each baby to check for jaundice and blood sugar levels. I’m not ashamed to tell you this: I cannot handle the screams of my children in pain. It is the most devastating sound I have ever heard– I could barely get through it and I wasn’t even the one getting stuck! Ugh.

So, we’re looking at several more days in the NICU for them, and I’m thrilled to just keep driving back and forth to be with them so that they can keep receiving great care. Since the University of Illinois is here in town, we enjoy a small town life in the middle of central Illinois with the perks of living in a big city: great cinema, arts, culture, amazing ethnic restaurants, and incredible professionals. My ob-gyn, Dr. Wozniak, took great care of me and the babies during my pregnancy and got them out in time to keep me from getting any sicker and to keep them from getting sick from me! And our babies’ neonatologist, Dr. Stratton, has all their best interests in mind and is making decisions based on what they need. He DOES have a guinea pig named Rainbow Sparkalina (or his daughter does), so you know he’s good. 🙂 We are so grateful for the excellent care we have received and to be living where we do.

Oh!  And they have little portable monitors to send us home with when the babies DO come home, so that is fantastic.  We can monitor them and be warned anytime something goes amiss, and they give us training with it, so that is a HUGE relief for both of us!  The Olsons had a crappy day, but there was some great news too and the babies’ honorary great-grandmother got to sit with them and me this afternoon for much-needed cuddling and comfort time, so it wasn’t a total loss.

We’re doomed

While I’m on here and posting pictures, I may as well get the word out in case we don’t have time to post as often anymore: The babies are super over-achievers and the NICU wants to send them home tomorrow! They are just over 35 weeks (out of 40), and we were told that they would probably stay until they are the equivalent of 36 weeks because they would need time to catch up and develop to “full-term.” Well! 36 weeks would be another week, and they are already cranking along on their development. I’m not sure my parenting development is moving as quickly, but I guess we’ll find out! Tonight, we “room over,” which is the NICU’s genius idea for helping parents acclimate to bringing home NICU babies. They have a special suite where new parents stay the night with the NICU babies who are going home soon to provide all their care while under the watchful eye of a NICU nurse. That way, we are taking care of things but can get help any time. We’re supposed to be there, with carseats, around 7:30pm tonight. If their MD thinks they are set, Zach gets circumcised tomorrow and then they go home with us.
Augh! I’m so excited to get them home but we thought maybe we had a couple more days! And we thought we’d have time to get breast-feeding down better. And we’re doomed! Bring on the craziness…